Welcome to the website of the Foundation “Faber Goes USA”
 
Faber, a sweet and energetic boy of 3 years old, lives with his parents and younger brother Morris in Eindhoven – Holland.
On the 25th of March their nice life changes dramatically, because the doctors discovered a neuroblastoma tumor in his neck, kidney and his bone marrow.
 
This means that Faber has a category #4 neuroblastoma. Neuroblastoma is diagnosed at 1/100.000 children between 0- and 6 years old and thus effectively ~25 children per year in Holland.
The prognosis of this sort of cancer varies a lot. Category #1 and #2 will usually go away by itself, category #3 is “well treatable” and category 4 has the worst prognosis -> between 20% and 50% chance of survival.
 
A neuroblastoma in category #4 is treatable, but it’s a very heavy and intense treatment. Faber will undergo five chemo-therapy’s, surgery, than one more very high-dose chemo-therapy and then radiation. On that moment (approx.. 7 months later) Faber should be “cancer-free”, but the chance of recurrence is very high.
 
To minimize the chance of recurrence, Faber can go to America for an immune treatment therapy, which gives a 30% higher chance of survival.
This therapy will take approximately 6 months, receiving 7 very painful treatments of 4 days each. To understand the pain, you must know that they accompany each treatment with morphine. After each treatment, Faber’s condition is back to 0%, which means that he has to recover and therefor no possibility of flying back to Holland in between the treatments.
 
For more information about the total route, see “Faber’s route”.
 
The health insurance in Holland will only reimburse a part of the costs Faber to have this immune treatment. There are a lot of other costs, which are not covered like: accommodation, travel and of course all “fixed” costs in Holland.
 
To ensure the possibility of this treatment for Faber, friends and family have setup this foundation with the name: Faber goes USA. This foundation has set itself the goal to generate sufficient funds for covering the costs which arise from the desperately needed treatment of Faber Wijdeveld for his anti-body treatment in Philadelphia, USA.

We have estimated that we will need somewhere between € 30.000,- and € 50.000,-, depending on the compensation of the (health)insurance.
These funds will be raised by organizing various activities, recruiting sponsors and money which is received from donors.
 
If the situation arises that the journey cannot be continued or in the lucky circumstances that there are funds left over, than that money will be donated to another foundation such as: Villa Joep, KIKA (foundation for children cancer free) or another child cancer related goal.
 
We can use your support and we are very thankful on beforehand for helping in any way !
 
Joost, Romy, Faber and Morris Wijdeveld
 

31 december 2014 : Afscheid

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Lieve Jasper, Ik noem deze blog – afscheid – want als alles goed gaat ben ik de komende jaren niet meer op Facebook te vinden. Mede geïnspireerd door de smakeloze ideeën van Facebook zelf om foto’s te gaan gebruiken in advertenties etc., waarbij ik er niet aan moet denken dat er een foto van mij uit de tijd dat ik ziek was, ineens bij een Danoontje reclame wordt getoond en deze ineens “viral” gaat…

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9 juni 2014 : Gewone leven

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Lieve Jasper, Het is al weer even geleden dat we een update geschreven hebben, maar er was dan ook niet zo veel te melden over mijzelf.

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8 mei 2014 : We’re back !!!

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Lieve Jasper,
Het is inmiddels ruim 3 weken geleden dat we de laatste echte update geplaatst hebben. Natuurlijk hebben we enkele foto’s van onze heerlijke vakantie en terugkomst op FB gezet, maar geen blogje.

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14 april 2014 : Laatste update vanuit Philly

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Lieve Jasper,
Waarschijnlijk heb je al gezien dat er een hele mooie ster bij is gekomen! Helaas is mijn vriendinnetje Zoë vorige week donderdag overleden en heeft dus helaas de strijd tegen deze verschrikkelijke ziekte niet kunnen winnen!!

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7 april 2014 : JOEHOE!!! KLAAAAAARRRRR!!!!!

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Lieve Jasper,
Zojuist ging het laatste piepje van de laatste dag van de laatste kuur CH14.18! Het zit erin en deze kuur is helemaal met succes afgesloten!

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